How to Support Children When A Parent Is Diagnosed With An Illness

When A Parent Is Diagnosed With An Illness

Being the parent of an 11- and 13-year-old, I am shocked at the number of families we know that have a parent with a life-threatening illness. When I was growing up, I don’t remember hearing of friends or classmates who had to handle these types of family challenges or stresses. 

Just a few years ago, at my children’s school, three mothers in one grade level received breast cancer diagnoses. I know this is not a statistic per se, but the sheer fact that it is now so “common” is harrowing. One of the most frequent questions I get when a diagnosis has been made is, “What can I do as a parent to help and support my child now that my partner is sick?”

There is no simple answer to this question, but there are things you can do to help support your child to stay healthy, secure, and grounded. And no matter what you do or say, you will have to plan for the unexpected. Sometimes there needs to be a plan A, B, C and D! Maintaining routines, asking for help, and honest communication are just three strategies for sustaining a family dealing with a serious or life-threatening illness. 

Maintain Routines and Schedules. 

Initially after a diagnosis is made, some form of chaos usually follows. This can be part of the process — disruptions in the family schedule are inevitable. However, it can be extremely helpful for children to return to routines that include sleep schedules, meal times, and activities because it re-establishes that sense of stability and security.

You can start by writing out a daily schedule for young children or a weekly calendar for older children. Having a schedule written out will also help those supporting you during this time, such as friends, family and paid childcare providers, to maintain routines when you cannot be the one to carry them out. 

In creating your list or calendar, think beyond the places your children need to be, and also include some of the rituals you maintain in your family such as Friday night dinners, movie nights, or yearly trips. Be sure to include these when thinking about your schedules as well, because they help to create a feeling of normalcy.

Ask For Help.

 We live in a culture that values independence and self-sufficiency, even if it becomes detrimental to our wellbeing. Because of these cultural values, it may be even more challenging for us to turn to friends, co-workers, school personnel, or even acquaintances to help in managing our children’s lives.

The reality is you probably will not have the time and energy to manage and control the minutiae of your child’s day. Those around you really do want to contribute and show their love for you and your family. Sometimes it requires a re-framing or shifting of the lens to see that by allowing others to help and give, you can be giving a gift, too. The joy you provide others in receiving is equally as valuable as the help they are offering. Additionally, by asking or accepting help, you are modeling this behavior for your children, which communicates to them that they don’t have to manage their thoughts and feelings all on their own. 

Be honest and keep communication open. 

Talking about the illness and sharing some of the basic facts are very important when communicating with children. There is nothing worse or more anxiety provoking for children than to learn about the truth of their parent’s illness by overhearing it indirectly or from someone else. 

If there is uncertainty or lack of a clear path to treatment or outcomes, it may be helpful to slowly introduce the illness by discussing the first steps that will be taken, such as “Daddy is going in for an important surgery.” In addition, unless the outcome is clearly grim, it is important to convey a confidence in the process — to even begin treatment one needs to mobilize all the confidence he can. 
Finding the right time to talk with your child would be the first step. Being mindful of when your child is most open to this type of dialogue can be helpful. For young children, bedtime can be one of these moments, while talking in the car or during activities might be more comfortable for older children. The key is to be honest about the facts and your feelings. 

Even though it may feel counterintuitive, it can be helpful to show your own emotions. Doing so will help validate some of your children’s own feelings. You can reassure them that you are there to support them and understand their experiences and emotions. 

There is no right or wrong way to handle these tough moments in our family lives. Every family and every child has different needs. These three suggestions can be a starting point in helping to preserve a sense of well being in your home. Just as all practices in parenting, there is absolutely no “right way.” There is no place for guilt, either — guilt does not benefit you or your children. The key is to stay connected and communicate, maintain normalcy through rituals and routines, and accept the love your family and community wish to show you.

Would you like to keep these tips handy for yourself or a friend?  Download the tips below:

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About the Author: Melissa Benaroya

Melissa Benaroya, LICSW, is a Seattle-based parent coach, speaker and author in the Seattle area (MelissaBenaroya.com). She created the Childproof Parenting online course and is the co-founder of GROW Parenting and Mommy Matters, and the co-author of The Childproof Parent. Melissa provides parents with the tools and support they need to raise healthy children and find more joy in parenting. Melissa offers parent coaching and classes and frequently speaks at area schools and businesses. Check out Melissa’s blog for more great tips on common parenting issues and Facebook for the latest news in parent education.

2 Comments

Aurora

I was such a kid, my mother has a serious genetic illness but when I was a child I didn’t understand anything. I didn’t even hear the proper name of this illness until I was an adult. My mother illness was a taboo in my family and it wasn’t good at all.
I think those advices are really useful and I wish that my parents knew them all in past. This is what I needed.
Actually I have some questions. This illnes is still present in my family so it means that me, my brother, my cousins can get it. We have 50% chance that we already inherited it, but we will know it for sure in older life. But we have a chance to make a genetic test. I wonder – what age is good to let you child know that he or she also can have this illness? This is huge and very scary thing but I don’t believe that hiding this information will be helpful… Is it OK to wait until the person will be a grown up? What do you think about such a situation? Do you have some advices?

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andrea

my close friend had a similar situation…my friend and her sister decided not to have the test because they live everyday positive thinking they might not have it (motorneurone),they were both early 20s when their mom became ill and slowly lost her in stages to the terrible illness.my friend is now 48 has a good life and most of all is happy . wish you and your family a happy healthy life..try to not worry about what not happen. andrea

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Hello Adelaide! I’ll be in Adelaide on Friday 27 June to present a full-day workshop on anxiety. 

This is not just another anxiety workshop, and is for anyone who lives or works with young people - therapists, educators, parents, OTs - anyone. 

Tickets are still available. Search Hey Sigmund workshops for a full list of events, dates, and to buy tickets or see here https://www.heysigmund.com/public-events/
First we decide, ‘Is this discomfort from something unsafe or is it from something growthful?’

Then ask, ‘Is this a time to lift them out of the brave space, or support them through it?’

To help, look at how they’ll feel when they (eventually) get through it. If they could do this bravely thing easily tomorrow, would they feel proud? Happy? Excited? Grateful they did it? 

‘Brave’ isn’t about outcome. It’s about handling the discomfort of the brave space and the anxiety that comes with that. They don’t have to handle it all at once. The move through the brave space can be a shuffle rather than a leap. 

The more we normalise the anxiety they feel, and the more we help them feel safer with it (see ‘Hey Warrior’ or ‘Ups and Downs’ for a hand with this), the more we strengthen their capacity to move through the brave space with confidence. This will take time, experience, and probably lots of anxiety along the way. It’s just how growth is. 

We don’t need to get rid of their anxiety. The key is to help them recognise that they can feel anxious and do brave. They won’t believe this until they experience it. Anxiety shrinks the feeling of brave, not the capacity for it. 

What’s important is supporting them through the brave space lovingly, gently (though sometimes it won’t feel so gentle) and ‘with’, little step by little step. It doesn’t matter how small the steps are, as long as they’re forward.♥️
Of course we’ll never ever stop loving them. But when we send them away (time out),
ignore them, get annoyed at them - it feels to them like we might.

It’s why more traditional responses to tricky behaviour don’t work the way we think they did. The goal of behaviour becomes more about avoiding any chance of disconnection. It drive lies and secrecy more than learning or their willingness to be open to us.

Of course, no parent is available and calm and connected all the time - and we don’t need to be. 

It’s about what we do most, how we handle their tricky behaviour and their big feelings, and how we repair when we (perhaps understandably) lose our cool. (We’re human and ‘cool’ can be an elusive little beast at times for all of us.)

This isn’t about having no boundaries. It isn’t about being permissive. It’s about holding boundaries lovingly and with warmth.

The fix:

- Embrace them, (‘you’re such a great kid’). Reject their behaviour (‘that behaviour isn’t okay’). 

- If there’s a need for consequences, let this be about them putting things right, rather than about the loss of your or affection.

- If they tell the truth, even if it’s about something that takes your breath away, reward the truth. Let them see you’re always safe to come to, no matter what.

We tell them we’ll love them through anything, and that they can come to us for anything, but we have to show them. And that behaviour that threatens to steal your cool, counts as ‘anything’.

- Be guided by your values. The big ones in our family are honesty, kindness, courage, respect. This means rewarding honesty, acknowledging the courage that takes, and being kind and respectful when they get things wrong. Mean is mean. It’s not constructive. It’s not discipline. It’s not helpful. If we would feel it as mean if it was done to us, it counts as mean when we do it to them.

Hold your boundary, add the warmth. And breathe.

Big behaviour and bad decisions don’t come from bad kids. They come from kids who don’t have the skills or resources in the moment to do otherwise.

Our job as their adults is to help them build those skills and resources but this takes time. And you. They can’t do this without you.❤️
We can’t fix a problem (felt disconnection) by replicating the problem (removing affection, time-out, ignoring them).

All young people at some point will feel the distance between them and their loved adult. This isn’t bad parenting. It’s life. Life gets in the way sometimes - work stress, busy-ness, other kiddos.

We can’t be everything to everybody all the time, and we don’t need to be.

Kids don’t always need our full attention. Mostly, they’ll be able to hold the idea of us and feel our connection across time and space.

Sometimes though, their tanks will feel a little empty. They’ll feel the ‘missing’ of us. This will happen in all our relationships from time to time.

Like any of us humans, our kids and teens won’t always move to restore that felt connection to us in polished or lovely ways. They won’t always have the skills or resources to do this. (Same for us as adults - we’ve all been there.)

Instead, in a desperate, urgent attempt to restore balance to the attachment system, the brain will often slide into survival mode. 

This allows the brain to act urgently (‘See me! Be with me!) but not always rationally (‘I’m missing you. I’m feeling unseen, unnoticed, unchosen. I know this doesn’t make sense because you’re right there, and I know you love me, but it’s just how I feel. Can you help me?’

If we don’t notice them enough when they’re unnoticeable, they’ll make themselves noticeable. For children, to be truly unseen is unsafe. But being seen and feeling seen are different. Just because you see them, doesn’t mean they’ll feel it.

The brain’s survival mode allows your young person to be seen, but not necessarily in a way that makes it easy for us to give them what they need.

The fix?

- First, recognise that behaviour isn’t about a bad child. It’s a child who is feeling disconnected. One of their most important safety systems - the attachment system - is struggling. Their behaviour is an unskilled, under-resourced attempt to restore it.

- Embrace them, lean in to them - reject the behaviour.

- Keep their system fuelled with micro-connections - notice them when they’re unnoticeable, play, touch, express joy when you’re with them, share laughter.♥️
Everything comes back to how safe we feel - everything: how we feel and behave, whether we can connect, learn, play - or not. It all comes back to felt safety.

The foundation of felt safety for kids and teens is connection with their important adults.

Actually, connection with our important people is the foundation of felt safety for all of us.

All kids will struggle with feeling a little disconnected at times. All of us adults do too. Why? Because our world gets busy sometimes, and ‘busy’ and ‘connected’ are often incompatible.

In trying to provide the very best we can for them, sometimes ‘busy’ takes over. This will happen in even the most loving families.

This is when you might see kiddos withdraw a little, or get bigger with their behaviour, maybe more defiant, bigger feelings. This is a really normal (though maybe very messy!) attempt to restore felt safety through connection.

We all do this in our relationships. We’re more likely to have little scrappy arguments with our partners, friends, loved adults when we’re feeling disconnected from them.

This isn’t about wilful attempt, but an instinctive, primal attempt to restore felt safety through visibility. Because for any human, (any mammal really), to feel unseen is to feel unsafe.

Here’s the fix. Notice them when they are unnoticeable. If you don’t have time for longer check-ins or conversations or play, that’s okay - dose them up with lots of micro-moments of connection.

Micro-moments matter. Repetition matters - of loving incidental comments, touch, laughter. It all matters. They might not act like it does in the moment - but it does. It really does.

And when you can, something else to add in is putting word to the things you do for them that might go unnoticed - but doing this in a joyful way - not in a ‘look at what I do for you’ way.

‘Guess what I’m making for dinner tonight because I know how much you love it … pizza!’

‘I missed you today. Here you go - I brought these car snacks for you. I know how much you love these.’

‘I feel like I haven’t had enough time with you today. I can’t wait to sit down and have dinner with you.’ ❤️

#parenting #gentleparenting #parent #parentingwithrespect

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