How to Support Children When A Parent Is Diagnosed With An Illness

When A Parent Is Diagnosed With An Illness

Being the parent of an 11- and 13-year-old, I am shocked at the number of families we know that have a parent with a life-threatening illness. When I was growing up, I don’t remember hearing of friends or classmates who had to handle these types of family challenges or stresses. 

Just a few years ago, at my children’s school, three mothers in one grade level received breast cancer diagnoses. I know this is not a statistic per se, but the sheer fact that it is now so “common” is harrowing. One of the most frequent questions I get when a diagnosis has been made is, “What can I do as a parent to help and support my child now that my partner is sick?”

There is no simple answer to this question, but there are things you can do to help support your child to stay healthy, secure, and grounded. And no matter what you do or say, you will have to plan for the unexpected. Sometimes there needs to be a plan A, B, C and D! Maintaining routines, asking for help, and honest communication are just three strategies for sustaining a family dealing with a serious or life-threatening illness. 

Maintain Routines and Schedules. 

Initially after a diagnosis is made, some form of chaos usually follows. This can be part of the process — disruptions in the family schedule are inevitable. However, it can be extremely helpful for children to return to routines that include sleep schedules, meal times, and activities because it re-establishes that sense of stability and security.

You can start by writing out a daily schedule for young children or a weekly calendar for older children. Having a schedule written out will also help those supporting you during this time, such as friends, family and paid childcare providers, to maintain routines when you cannot be the one to carry them out. 

In creating your list or calendar, think beyond the places your children need to be, and also include some of the rituals you maintain in your family such as Friday night dinners, movie nights, or yearly trips. Be sure to include these when thinking about your schedules as well, because they help to create a feeling of normalcy.

Ask For Help.

 We live in a culture that values independence and self-sufficiency, even if it becomes detrimental to our wellbeing. Because of these cultural values, it may be even more challenging for us to turn to friends, co-workers, school personnel, or even acquaintances to help in managing our children’s lives.

The reality is you probably will not have the time and energy to manage and control the minutiae of your child’s day. Those around you really do want to contribute and show their love for you and your family. Sometimes it requires a re-framing or shifting of the lens to see that by allowing others to help and give, you can be giving a gift, too. The joy you provide others in receiving is equally as valuable as the help they are offering. Additionally, by asking or accepting help, you are modeling this behavior for your children, which communicates to them that they don’t have to manage their thoughts and feelings all on their own. 

Be honest and keep communication open. 

Talking about the illness and sharing some of the basic facts are very important when communicating with children. There is nothing worse or more anxiety provoking for children than to learn about the truth of their parent’s illness by overhearing it indirectly or from someone else. 

If there is uncertainty or lack of a clear path to treatment or outcomes, it may be helpful to slowly introduce the illness by discussing the first steps that will be taken, such as “Daddy is going in for an important surgery.” In addition, unless the outcome is clearly grim, it is important to convey a confidence in the process — to even begin treatment one needs to mobilize all the confidence he can. 
Finding the right time to talk with your child would be the first step. Being mindful of when your child is most open to this type of dialogue can be helpful. For young children, bedtime can be one of these moments, while talking in the car or during activities might be more comfortable for older children. The key is to be honest about the facts and your feelings. 

Even though it may feel counterintuitive, it can be helpful to show your own emotions. Doing so will help validate some of your children’s own feelings. You can reassure them that you are there to support them and understand their experiences and emotions. 

There is no right or wrong way to handle these tough moments in our family lives. Every family and every child has different needs. These three suggestions can be a starting point in helping to preserve a sense of well being in your home. Just as all practices in parenting, there is absolutely no “right way.” There is no place for guilt, either — guilt does not benefit you or your children. The key is to stay connected and communicate, maintain normalcy through rituals and routines, and accept the love your family and community wish to show you.

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About the Author: Melissa Benaroya

Melissa Benaroya, LICSW, is a Seattle-based parent coach, speaker and author in the Seattle area (MelissaBenaroya.com). She created the Childproof Parenting online course and is the co-founder of GROW Parenting and Mommy Matters, and the co-author of The Childproof Parent. Melissa provides parents with the tools and support they need to raise healthy children and find more joy in parenting. Melissa offers parent coaching and classes and frequently speaks at area schools and businesses. Check out Melissa’s blog for more great tips on common parenting issues and Facebook for the latest news in parent education.

2 Comments

Aurora

I was such a kid, my mother has a serious genetic illness but when I was a child I didn’t understand anything. I didn’t even hear the proper name of this illness until I was an adult. My mother illness was a taboo in my family and it wasn’t good at all.
I think those advices are really useful and I wish that my parents knew them all in past. This is what I needed.
Actually I have some questions. This illnes is still present in my family so it means that me, my brother, my cousins can get it. We have 50% chance that we already inherited it, but we will know it for sure in older life. But we have a chance to make a genetic test. I wonder – what age is good to let you child know that he or she also can have this illness? This is huge and very scary thing but I don’t believe that hiding this information will be helpful… Is it OK to wait until the person will be a grown up? What do you think about such a situation? Do you have some advices?

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andrea

my close friend had a similar situation…my friend and her sister decided not to have the test because they live everyday positive thinking they might not have it (motorneurone),they were both early 20s when their mom became ill and slowly lost her in stages to the terrible illness.my friend is now 48 has a good life and most of all is happy . wish you and your family a happy healthy life..try to not worry about what not happen. andrea

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When things feel hard or the world feels big, children will be looking to their important adults for signs of safety. They will be asking, ‘Do you think I'm safe?' 'Do you think I can do this?' With everything in us, we have to send the message, ‘Yes! Yes love, this is hard and you are safe. You can do hard things.'

Even if we believe they are up to the challenge, it can be difficult to communicate this with absolute confidence. We love them, and when they're distressed, we're going to feel it. Inadvertently, we can align with their fear and send signals of danger, especially through nonverbals. 

What they need is for us to align with their 'brave' - that part of them that wants to do hard things and has the courage to do them. It might be small but it will be there. Like a muscle, courage strengthens with use - little by little, but the potential is always there.

First, let them feel you inside their world, not outside of it. This lets their anxious brain know that support is here - that you see what they see and you get it. This happens through validation. It doesn't mean you agree. It means that you see what they see, and feel what they feel. Meet the intensity of their emotion, so they can feel you with them. It can come off as insincere if your nonverbals are overly calm in the face of their distress. (Think a zen-like low, monotone voice and neutral face - both can be read as threat by an anxious brain). Try:

'This is big for you isn't it!' 
'It's awful having to do things you haven't done before. What you are feeling makes so much sense. I'd feel the same!

Once they really feel you there with them, then they can trust what comes next, which is your felt belief that they will be safe, and that they can do hard things. 

Even if things don't go to plan, you know they will cope. This can be hard, especially because it is so easy to 'catch' their anxiety. When it feels like anxiety is drawing you both in, take a moment, breathe, and ask, 'Do I believe in them, or their anxiety?' Let your answer guide you, because you know your young one was built for big, beautiful things. It's in them. Anxiety is part of their move towards brave, not the end of it.
Sometimes we all just need space to talk to someone who will listen without giving advice, or problem solving, or lecturing. Someone who will let us talk, and who can handle our experiences and words and feelings without having to smooth out the wrinkles or tidy the frayed edges. 

Our kids need this too, but as their important adults, it can be hard to hush without needing to fix things, or gather up their experience and bundle it into a learning that will grow them. We do this because we love them, but it can also mean that they choose not to let us in for the wrong reasons. 

We can’t help them if we don’t know what’s happening in their world, and entry will be on their terms - even more as they get older. As they grow, they won’t trust us with the big things if we don’t give them the opportunity to learn that we can handle the little things (which might feel seismic to them). They won’t let us in to their world unless we make it safe for them to.

When my own kids were small, we had a rule that when I picked them up from school they could tell me anything, and when we drove into the driveway, the conversation would be finished if they wanted it to be. They only put this rule into play a few times, but it was enough for them to learn that it was safe to talk about anything, and for me to hear what was happening in that part of their world that happened without me. My gosh though, there were times that the end of the conversation would be jarring and breathtaking and so unfinished for me, but every time they would come back when they were ready and we would finish the chat. As it turned out, I had to trust them as much as I wanted them to trust me. But that’s how parenting is really isn’t it.

Of course there will always be lessons in their experiences we will want to hear straight up, but we also need them to learn that we are safe to come to.  We need them to know that there isn’t anything about them or their life we can’t handle, and when the world feels hard or uncertain, it’s safe here. By building safety, we build our connection and influence. It’s just how it seems to work.♥️
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#parenting #parenthood #mindfulparenting
Words can be hard sometimes. The right words can be orbital and unconquerable and hard to grab hold of. Feelings though - they’ll always make themselves known, with or without the ‘why’. 

Kids and teens are no different to the rest of us. Their feelings can feel bigger than words - unfathomable and messy and too much to be lassoed into language. If we tap into our own experience, we can sometimes (not all the time) get an idea of what they might need. 

It’s completely understandable that new things or hard things (such as going back to school) might drive thoughts of falls and fails and missteps. When this happens, it’s not so much the hard thing or the new thing that drives avoidance, but thoughts of failing or not being good enough. The more meaningful the ‘thing’ is, the more this is likely to happen. If you can look behind the words, and through to the intention - to avoid failure more than the new or difficult experience, it can be easier to give them what they need. 

Often, ‘I can’t’ means, ‘What if I can’t?’ or, ‘Do you think I can?’, or, ‘Will you still think I’m brave, strong, and capable of I fail?’ They need to know that the outcome won’t make any difference at all to how much you adore them, and how capable and exceptional you think they are. By focusing on process, (the courage to give it a go), we clear the runway so they can feel safer to crawl, then walk, then run, then fly. 

It takes time to reach full flight in anything, but in the meantime the stumbling can make even the strongest of hearts feel vulnerable. The more we focus on process over outcome (their courage to try over the result), and who they are over what they do (their courage, tenacity, curiosity over the outcome), the safer they will feel to try new things or hard things. We know they can do hard things, and the beauty and expansion comes first in the willingness to try. 
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#parenting #mindfulparenting #positiveparenting #mindfulparent
Never in the history of forever has there been such a  lavish opportunity for a year to be better than the last. Not to be grabby, but you know what I’d love this year? Less opportunities that come in the name of ‘resilience’. I’m ready for joy, or adventure, or connection, or gratitude, or courage - anything else but resilience really. Opportunities for resilience have a place, but 2020 has been relentless with its servings, and it’s time for an out breath. Here’s hoping 2021 will be a year that wraps its loving arms around us. I’m ready for that. x
The holidays are a wonderland of everything that can lead to hyped up, exhausted, cranky, excited, happy kids (and adults). Sometimes they’ll cycle through all of these within ten minutes. Sugar will constantly pry their little mouths wide open and jump inside, routines will laugh at you from a distance, there will be gatherings and parties, and everything will feel a little bit different to usual. And a bit like magic. 

Know that whatever happens, it’s all part of what the holidays are meant to look like. They aren’t meant to be pristine and orderly and exactly as planned. They were never meant to be that. Christmas is about people, your favourite ones, not tasks. If focusing on the people means some of the tasks fall down, let that be okay, because that’s what Christmas is. It’s about you and your people. It’s not about proving your parenting stamina, or that you’ve raised perfectly well-behaved humans, or that your family can polish up like the catalog ones any day of the week, or that you can create restaurant quality meals and decorate the table like you were born doing it. Christmas is messy and ridiculous and exhausting and there will be plenty of frayed edges. And plenty of magic. The magic will happen the way it always happens. Not with the decorations or the trimmings or the food or the polish, but by being with the ones you love, and the ones who love you right back.

When it all starts to feel too important, too necessary and too ‘un-let-go-able’, be guided by the bigger truth, which is that more than anything, you will all remember how you all felt – as in how happy they felt, how loved they felt were, how noticed they felt. They won’t care about the instagram-worthy meals on the table, the cleanliness of the floors, how many relatives they visited, or how impressed other grown-ups were with their clean faces and darling smiles. It’s easy to forget sometimes, that what matters most at Christmas isn’t the tasks, but the people – the ones who would give up pretty much anything just to have the day with you.

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