Guest Post: When I Grow Up I Want to Talk. My Story of Selective Mutism

When I grow up I want to talk. My story of selective mutism.
By Kathryn Harper

When my son grows up he would like to be a spy, a fireman or a cowboy. My daughter thinks she would like to be a vet.

I had many dreams when I was a child about what I might do or be when I was grown up. Becoming an author featured quite highly – along with artist, and I’m sure I went through stages of thinking I might be a teacher, an air hostess and even a fireman. Despite all of this, more than anything, I dreamed that when I grew up I would be just like everybody else.

 When I grew up, I wanted to be able to talk to people. I wanted to feel understood and I wanted to be able to answer all those questions I couldn’t answer when I was small. I dreamed and dreamed of what I would say when I could, and how I would help people to understand …

Why are you so quiet?

 When I was young I was always being asked questions: “Why don’t you talk? Why are you so quiet?” 

I never understood why people asked me those questions so often. I didn’t talk normally, so pushed with such a question, the chances I might answer were significantly less than zero.

Inside my head, a question like this would have me screaming.

My emotions would bubble up and threaten to take over, as my rigid body stood in shock, with wide eyes staring into nothing in particular, or focussing lazily on a particular section of the floor. The words would echo over and over and over, until it felt like thousands of people were standing around me, each one of them demanding an answer.

At the same time, my world would slow, and I was aware of my heart beating through my whole body. Sometimes it felt like it took over the room, every one else was moving in slow, blurry, jolting movements as my heart’s drumming filled my ears. Tears would prick my eyes, and words would flood into my throat.

 My throat, closed tight, gave nothing away. No matter how I tried, I couldn’t answer those questions. Sometimes my mouth would open and close fruitlessly. The words just wouldn’t follow.

 I wished that they would.

I wished I could talk like everybody else.

What is Selective Mutism?

I didn’t know it at the time, but when I was younger I suffered from Selective Mutism, an anxiety disorder in which the sufferer finds it impossible to talk in certain situations (even though they can talk fluently in situations where they feel more comfortable). This condition is much more common than is widely known, and it is believed that somewhere between 1:1000 to as many as 1:100 children may suffer to some degree.

Many people mistakenly believe that people like me are choosing not to speak, but it really isn’t like this at all.

The body becomes swamped with fear and anxiety, and the vocal chords are literally frozen. Speech is not possible until the anxiety is lessened – and so finding situations and spaces in which a selective mute person feels comfortable is a crucial part of helping them to recover. No amount of asking, persuading, questioning or demanding will help.

More than just shy.

 I always assumed I was shy or quiet. That’s what other people seemed to think – and I figured they must be right. However, sometimes I compared myself to other shy or quiet people and somehow something didn’t seem right.

I didn’t feel shy or quiet the way that other people were shy or quiet. I felt like there was more than this going on. I felt different, and even a little wrong.

I imagine many selective mute children might be mistaken as being shy – but hoping a selective mute child might grow out of it like shy children often do is only likely to make things worse. The earlier a child is identified as being selective mute, and given ways to manage their anxiety, the better.

Working with selective mutism.

 I always longed to feel like I was being heard. I understood that communication was about a lot more than the words that I couldn’t say, but it didn’t seem like many people were able to listen in the way I needed them to.

I longed for someone who could sense the overwhelm and anxiety I felt; someone who would take me away from the over-stimulating environments that caused my voice to shut itself down. I longed to feel acknowledged and accepted for the communication that I could manage – and I longed for the pressure to disappear.

I do not know a lot about the sliding in process that is often used to help selectively mute children today, but from what I am able to grasp, this is a way of communicating to children that you can hear them the way I once craved.

Reducing anxiety provoking stimuli and gradually expanding the comfortable space for the child to eventually include other people is something that slowly and respectfully helps the sensitivity of selective mute children to adjust. I have heard of it being used with much success, and it makes sense to me why it works.

How I found my voice.

I found my own ways to cope as a child – and managed to begin talking to meet the expectations of other people. At the time it served its purpose, as I was no longer mute – but the implications were that I would have to spend a good portion of my adult life reconnecting with my real voice and the words that I wanted to say. 

Today, I still sometimes find it difficult to talk. Words still get stuck on their way out, and sometimes I feel like I lose them completely. Sometimes what I want to say comes out as something that doesn’t quite sound like I wanted it to. Sometimes, words just fall out of my mouth, and they don’t appear to make any sense.

Other times I still can’t say anything at all.

I am learning that all of this is okay. Whether I can or can’t talk; whether people like it or they don’t; whether I am understood or judged harshly … what really matters is how I feel inside of myself, and acknowledging how far I have come.

Once upon a time I wanted many things for myself, and today I find myself living my dream. I am an author and illustrator who can talk to people in ways that help them to understand. I am reconnecting with my words, and all the time I am expanding the walls of my comfortable place.

People might still describe me as quiet, and perhaps I am in many ways, but I am no longer asked to explain myself. I do, however, feel compelled to share my explanations anyway. All those unanswered questions from my past have been asked of many other people too. Perhaps someone will find what they are looking for in my answers.


 Kathryn Harper“It feels like a purpose of mine to connect with my past and turn it into stories and lessons that will help both children and adults to Love the life they have.”

Kathryn Harper is author-illustrator of the Katie-Jane book series, written to explore emotional concepts and connect children to their feelings through fun, rhyming verse and beautiful illustrations. She also explores her personal experiences with selective mutism, anxiety and sensitivity on her blog at kathrynharper.net. 

 You can also find Kathryn on Twitter and Facebook.

5 Comments

Rachel

You describe Selective Mutism so well and as a parent of a SM child I have shared this with my friends to bring awareness to such a debilitating disorder that is sadly misunderstood for shyness (if only!). Thank you.

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Jana

Hey, I just wanted to say what you wrote about selective mutism was so beautifully written and I haven’t found a single thing i could relate to so much until I found this article thank you so much wow

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Follow Hey Sigmund on Instagram

Faces so often say so more than our words ever could. Even more than words and behaviour, faces tell the story of where we (and our nervous systems) are right now. Receive their joyful faces and their brave faces. Their scared faces and their sad faces. When their words are spicy and big their behaviour is bigger, receive their faces. Their faces won’t lie. And neither do ours. By receiving their faces it will open the way to show them, ‘I see you. I feel you. I’m with you.’♥️
Parenting was never meant to be about perfection. Neither was growing up. The messy times are so often where the growth happens - theirs and ours - but this can only happen if we can be with ourselves through the mess, with an open heart and an open mind. But this can be so hard some days! 

Let’s start by shoving the idea of perfect parenting out the door and let’s do that with full force. Perfection. Ugh. Let’s not do that to ourselves and let’s not do that to our young loves. It’s okay for them to see our imperfections, and it’s okay for them to lay theirs bare in front of us. We won’t break them if we yell sometimes. They will learn from our mistakes, and we will learn from theirs.♥️
If the feelings that send them ‘small’ don’t feel safe or supported, the ‘big’ of anger will step in. This doesn’t mean they aren’t actually safe or supported - it’s about what the brain perceives. 

Let them see that you can handle them in all their feelings. Breathe and be with - through their tears, or confusion, or lostness. Just let their feelings come, and let them be. Feelings heal when they’re felt. Big feelings don’t hurt children. What hurts is being alone in the feelings. Your strong, loving presence, your willingness to be with without needing them to be different, and certainty that they’ll get through this will hold them steady through the storm. If they don’t want you near them, that’s okay too. Let them know you’re they’re if they need.♥️
Brains love keeping us alive. They adore it actually. Their most important job is to keep us safe. This is above behaviour, relationships, and learning - except as these relate to safety. 

Safety isn’t about what is actually safe, but about what the brain perceives. Unless a brain feels safe, it won’t be as able to learn, connect, regulate, make good decisions, think through consequences. 

Young brains (all brains actually) feel safest when they feel connected to, and cared about by, their important adults.  This means that for us to have any influence on our kids and teens, we first need to make sure they feel safe and connected to us. 

This goes for any adult who wants to lead, guide or teach a young person - parents, teachers, grandparents, coaches. Children or teens can only learn from us if they feel connected to us. They’re no different to us. If we feel as though someone is angry or indifferent with us we’re more focused on that, and what needs to happen to avoid humiliation or judgement, or how to feel loved and connected again, than anything else. 

We won’t have influence if we don’t have connection. Connection let’s us do our job - whether that’s the job of parenting, teaching - anything. It helps the brain feel safe, so it will then be free to learn.♥️
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#parenting #parentingforward #parentingtips #mindfulparenting
The stories we tell ourselves influence how we feel and what we do. This happens to all of us. These stories can be influenced by our mood, history, stress - so many things that are outside of what’s actually happening. 

When our children are in distress, this will start to create distress in us. The idea of this is to mobilise us to protect, but when that distress happens in the absence of a ‘real’ threat, it can throw us into fight or flight. This can influence the story we tell ourselves. This is really normal.

Whenever you can, pause, and be open to a different story. It won’t necessarily make the behaviour okay, but it will make it easier to give your child or teen what they need in that moment - an anchor - a strong, steady, loving presence to guide them back to calm. 

When their brains and bodies are back to calm, then you can have the conversations that will grow them: what happened, what can you do differently, what can I do differently that would help?

The truth is that they are no different to us. In that moment they don’t want to be fixed. They want to feel seen, safe, and heard.♥️
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#parenting #parenthood #mindfulparenting

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