Guest Post: When I Grow Up I Want to Talk. My Story of Selective Mutism

When I grow up I want to talk. My story of selective mutism.
By Kathryn Harper

When my son grows up he would like to be a spy, a fireman or a cowboy. My daughter thinks she would like to be a vet.

I had many dreams when I was a child about what I might do or be when I was grown up. Becoming an author featured quite highly – along with artist, and I’m sure I went through stages of thinking I might be a teacher, an air hostess and even a fireman. Despite all of this, more than anything, I dreamed that when I grew up I would be just like everybody else.

 When I grew up, I wanted to be able to talk to people. I wanted to feel understood and I wanted to be able to answer all those questions I couldn’t answer when I was small. I dreamed and dreamed of what I would say when I could, and how I would help people to understand …

Why are you so quiet?

 When I was young I was always being asked questions: “Why don’t you talk? Why are you so quiet?” 

I never understood why people asked me those questions so often. I didn’t talk normally, so pushed with such a question, the chances I might answer were significantly less than zero.

Inside my head, a question like this would have me screaming.

My emotions would bubble up and threaten to take over, as my rigid body stood in shock, with wide eyes staring into nothing in particular, or focussing lazily on a particular section of the floor. The words would echo over and over and over, until it felt like thousands of people were standing around me, each one of them demanding an answer.

At the same time, my world would slow, and I was aware of my heart beating through my whole body. Sometimes it felt like it took over the room, every one else was moving in slow, blurry, jolting movements as my heart’s drumming filled my ears. Tears would prick my eyes, and words would flood into my throat.

 My throat, closed tight, gave nothing away. No matter how I tried, I couldn’t answer those questions. Sometimes my mouth would open and close fruitlessly. The words just wouldn’t follow.

 I wished that they would.

I wished I could talk like everybody else.

What is Selective Mutism?

I didn’t know it at the time, but when I was younger I suffered from Selective Mutism, an anxiety disorder in which the sufferer finds it impossible to talk in certain situations (even though they can talk fluently in situations where they feel more comfortable). This condition is much more common than is widely known, and it is believed that somewhere between 1:1000 to as many as 1:100 children may suffer to some degree.

Many people mistakenly believe that people like me are choosing not to speak, but it really isn’t like this at all.

The body becomes swamped with fear and anxiety, and the vocal chords are literally frozen. Speech is not possible until the anxiety is lessened – and so finding situations and spaces in which a selective mute person feels comfortable is a crucial part of helping them to recover. No amount of asking, persuading, questioning or demanding will help.

More than just shy.

 I always assumed I was shy or quiet. That’s what other people seemed to think – and I figured they must be right. However, sometimes I compared myself to other shy or quiet people and somehow something didn’t seem right.

I didn’t feel shy or quiet the way that other people were shy or quiet. I felt like there was more than this going on. I felt different, and even a little wrong.

I imagine many selective mute children might be mistaken as being shy – but hoping a selective mute child might grow out of it like shy children often do is only likely to make things worse. The earlier a child is identified as being selective mute, and given ways to manage their anxiety, the better.

Working with selective mutism.

 I always longed to feel like I was being heard. I understood that communication was about a lot more than the words that I couldn’t say, but it didn’t seem like many people were able to listen in the way I needed them to.

I longed for someone who could sense the overwhelm and anxiety I felt; someone who would take me away from the over-stimulating environments that caused my voice to shut itself down. I longed to feel acknowledged and accepted for the communication that I could manage – and I longed for the pressure to disappear.

I do not know a lot about the sliding in process that is often used to help selectively mute children today, but from what I am able to grasp, this is a way of communicating to children that you can hear them the way I once craved.

Reducing anxiety provoking stimuli and gradually expanding the comfortable space for the child to eventually include other people is something that slowly and respectfully helps the sensitivity of selective mute children to adjust. I have heard of it being used with much success, and it makes sense to me why it works.

How I found my voice.

I found my own ways to cope as a child – and managed to begin talking to meet the expectations of other people. At the time it served its purpose, as I was no longer mute – but the implications were that I would have to spend a good portion of my adult life reconnecting with my real voice and the words that I wanted to say. 

Today, I still sometimes find it difficult to talk. Words still get stuck on their way out, and sometimes I feel like I lose them completely. Sometimes what I want to say comes out as something that doesn’t quite sound like I wanted it to. Sometimes, words just fall out of my mouth, and they don’t appear to make any sense.

Other times I still can’t say anything at all.

I am learning that all of this is okay. Whether I can or can’t talk; whether people like it or they don’t; whether I am understood or judged harshly … what really matters is how I feel inside of myself, and acknowledging how far I have come.

Once upon a time I wanted many things for myself, and today I find myself living my dream. I am an author and illustrator who can talk to people in ways that help them to understand. I am reconnecting with my words, and all the time I am expanding the walls of my comfortable place.

People might still describe me as quiet, and perhaps I am in many ways, but I am no longer asked to explain myself. I do, however, feel compelled to share my explanations anyway. All those unanswered questions from my past have been asked of many other people too. Perhaps someone will find what they are looking for in my answers.


 Kathryn Harper“It feels like a purpose of mine to connect with my past and turn it into stories and lessons that will help both children and adults to Love the life they have.”

Kathryn Harper is author-illustrator of the Katie-Jane book series, written to explore emotional concepts and connect children to their feelings through fun, rhyming verse and beautiful illustrations. She also explores her personal experiences with selective mutism, anxiety and sensitivity on her blog at kathrynharper.net. 

 You can also find Kathryn on Twitter and Facebook.

6 Comments

Rachel

You describe Selective Mutism so well and as a parent of a SM child I have shared this with my friends to bring awareness to such a debilitating disorder that is sadly misunderstood for shyness (if only!). Thank you.

Reply
A

Thank you for this post. I appreciate it was written years ago, but would someone be able to share what the recommended book is? The amazon link no longer seems to work. Thank you!

Reply
Jana

Hey, I just wanted to say what you wrote about selective mutism was so beautifully written and I haven’t found a single thing i could relate to so much until I found this article thank you so much wow

Reply

Leave a Reply

Your email address will not be published. Required fields are marked *

Join our newsletter

We would love you to follow us on Social Media to stay up to date with the latest Hey Sigmund news and upcoming events.

Follow Hey Sigmund on Instagram

So ready to get started with ‘Hey Little Warrior’ in Melbourne. This is my fourth time this year presenting this workshop in Melbourne and we sell out every time.

So what do we do here?! We dive into how to support young children with anxiety. It’s my favourite thing to talk about. I love it. Even more than whether or not I want dessert. We talk about new ways to work with anxiety in littles so they can feel braver and bigger in the presence of it. This workshop is loaded with practical strategies. I love presenting this workshop.

(And yes - always yes to dessert. As if I would ever skip the most important meal of the day. Pffftt.)

@compass_australia
They’re often called sensory preferences, but they’re sensory needs.

In our adult worlds we can move our bodies and ourselves to seek regulation. If we don’t like noise we’re less likely to be DJs for example. If we don’t love heights we’re less likely to be pilots or skydivers. If we feel overwhelmed, we can step outside, go into an office, go to the bathroom, or pop on headphones for a break. If we need to move, we can stand, walk to get a tea. At school, this is so much harder.

When bodies don’t feel safe, there will be anxiety. This will potentially drive fight (anger, tantrums), flight (avoidance, running away, movement), or shutdown (in quiet distress and can’t learn). 

These are physiological issues NOT behavioural ones.

Whenever we can, we need to support physiological safety by accommodating sensory needs AND support brave behaviour. What’s tricky is disentangling anxiety driven by unmet sensory needs, from anxiety driven by brave behaviour.

The way through is to support their physiological needs, then move them towards brave behaviour.

Schools want to support this. They want all kids to be happy and the best they can be, but there will be a limit on their capacity to support this - not because they don’t want to, but because of a scarcity of resources.

There will often be many children with different physiological needs. Outside school there is nowhere else that has to accommodate so many individual needs, because as adults we won’t be drawn to environments that don’t feel okay. In contrast, school requires all kids to attend and stay regulated in the one environment.

For now, we don’t have a lot of options. Yes there are schools outside mainstream, and yes there is home school, but these options aren’t available to everyone.

So, until mainstream schools are supported with the resources (staff, spaces, small classes, less demand on curriculum … and the list goes on), what can we do?

- Help school with specific ways to support your child’s physiology while being mindful that teachers are also attending to the needs of 25+ other nervous systems. But be specific.
- Limit the list. Make this a ‘bare minimum needs’ list, not a ‘preferences’ one.♥️
Brave often doesn’t feel like ‘brave’. Most often, it feels like anxiety. If there is something brave, important, new, hard, there will always be anxiety right behind it. It’s the feeling of anxiety that makes it something brave - and brave is different for everyone.♥️

#anxietyawareness #childanxiety #anxietysupport #anxietyinkids #parent #positiveparenting
Recently I chatted with Sharon from the ADHD Families Podcast. I loved this chat. We took a dive into anxiety and ADHD, including anxiety at school and some strategies for schools and parents to support kiddos with anxiety and ADHD. Listen to the full episode 
here https://www.thefunctionalfamily.com/podcasts/adhd-families-podcast

thefunctionalfamily
Remember the power of ‘AND’. 

As long as they are actually safe:

They can feel anxious AND do brave.

They can feel like they aren’t ready for brave, AND be ready brave.

They can wish to avoid AND they can stay (or not be taken home).

They can be angry, anxious, and push us away AND we can look after them through the feelings without avoiding the brave/ new, hard/ important. 

We can wish for their anxiety, anger, sadness to be gone AND we can be with them without needing them to be different.

We can believe them (that they are anxious, scared, angry) AND believe in them (that they are capable).

When we hold their anxiety AND their capacity for brave, in equal measure and with compassion, we can show them that their anxiety doesn’t cancel their brave.♥️

Pin It on Pinterest

Share This