Living in the Shadow of Anorexia Nervosa

Living in the Shadow of Anorexia Nervosa
A guest post by Rebecca Perkins

Eight years ago I finally faced up to the fact that all was not well with my beautiful 14-year-old daughter’s health. She had over many months and in all reality a number of years been gradually changing her eating and exercise habits. I didn’t want to see, I didn’t want to name what I suspected was happening to my girl.

The numerous trips to the doctor, the hospital trips for any number of ‘presenting’ conditions hid from all of us — family, doctor, friends, consultants — the fact that my daughter was suffering from Anorexia Nervosa. I was witnessing the gradual diminishing of my daughter. Her weight, her energy, her vitality, her general well-being and health were not what they were. The lack of concentration, her mood swings, and her withdrawal from life were all the evidence I knew I needed.

What unfolded next is a mother’s worst nightmare — the fear, the guilt, the anxiety, the sadness, the anger, the distress, the desperation. My daughter was sick. I had so many questions I wanted to ask her, the psychiatrist, the nutritionist, the psychotherapist, myself. I wanted to know why, I wanted to know how. This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt — “if I’d been a better brother”… “if I’d been around more” … “if I hadn’t done as much sport” … My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, “I just want my sister back.”

I carried the weight of not only her illness but the emotional turmoil it was causing in our family. I supported my sons and my wider family in their anxieties. I found some support amongst my friends and my sister, but felt completely isolated and alone.

One of the hardest issues I had to deal with was recognizing and understanding that I couldn’t “fix” her. I couldn’t make her better, I couldn’t give her paracetamol or put a band-aid on a grazed knee. This illness was hers, not mine. She had to want to heal herself. In a way, I had to watch events unfold and be there with unconditional love for her at all times. When the rage came I stood and took the full force. When the tears came I sat and comforted. When the rejection of food came I suggested something else that might appeal. When the fear came I held her in my arms.

Friends and family asked me how I did it. How I coped day to day, week in week out, being constantly there for the family and my daughter. I’m not sure I had any other choice (yes of course we always have a choice, we can choose our attitude even when things seem impossible). I chose to get on with it. I chose to do all I could to be there for my family. I chose to allow my daughter to take control of her illness, her life.

I found a way to separate my daughter’s identity, the real person, from the behavior, which was the illness. I coped with whatever the “behavior” threw at me. My daughter wasn’t her behavior. Thinking back to how we parented when our children were young — we loved the child but didn’t like the tantrums. This is how I made sense of it in my head.

I now appreciate how resilient I am, how I bounce back after setbacks. I believe this is the case because I choose to live my life fully — ups and downs. Even today, 8 years on from her diagnosis, and I struggle to write without tears. Anorexia lived in our house for some time, casting a heavy shadow. It moved on, my daughter is well and living her life having learned like all of us from the experience.

This post originally featured in The Huffington Post and is reprinted here with full permission.


About the Author: Rebecca Perkins

Rebecca Perkins is the author of Best Knickers Always: 50 Lessons for Midlife and founder of RebPerkins.com. Her latest book 40 Words of Wisdom for my 24 Year Old: A Parenting Manifesto (originally a Huffington Post blog) was published in April.

 She began writing to make sense of her life after the ending of her 20 year marriage. Rebecca is a NLP Master Practitioner and Personal Performance Coach working with women to navigate the transition of midlife. She is passionate about midlife as a time for renewal and for living the second half of life with enthusiasm and vigour.

 As a coach she is challenging and fun, motivating and inspiring. Midlife has taught her to be open-minded, to take more risks, to enjoy the simple things and to live each and every day with the question, ‘If not now, when?’ She lives in London and enjoys supporting and being surrounded by her children, spending time with her guy and celebrating life after 50.

 You can contact Rebecca via her website and follow her on FacebookTwitterand Pinterest as well as YouTube.

Follow Rebecca on Instagram for her 365 days of self care #365selfcare 

(I recently read Rebecca’s book, Best Knickers Always: 50 Lessons for Midlife. It’s rich, warm and wonderful and full of practical, insightful ideas – a great read.)

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Melbourne, Adelaide … Will you join us? 

The @resilientkidsconference is coming to Melbourne (15 July) and Adelaide (2 September), and we’d love you to join us.

We’ve had a phenomenal response to this conference. Parents and carers are telling us that they’re walking away feeling even more confident, with strategies and information they can use straight away. That’s what this conference is all about. 

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I’ll be joining with @maggiedentauthor, @michellemitchell.author, and @drjustincoulson. We’ve got you covered! And we’re there for the day, with you. 

For tickets or more info, search ‘Resilient Kids Conference’ on Google, or go to this link https://www.resilientkidsconference.com.au/conference/.
We have to change the way we talk about anxiety. If we talk about it as a disorder, this is how it feels.

Yes anxiety can be so crushing, and yes it can intrude into every part of their everyday. But the more we talk about anxiety as a disorder, the more we drive ‘anxiety about the anxiety’. Even for big anxiety, there is nothing to be served in talking about it as a disorder. 

There is another option. We change the face of it - from an intruder or deficiency, to an ally. We change the story - from ‘There’s something wrong with me’ to, ‘I’m doing something hard.’ I’ve seen the difference this makes, over and over.

This doesn’t mean we ignore anxiety. Actually we do the opposite. We acknowledge it. We explain it for what it is: the healthy, powerful response of a magnificent brain that is doing exactly what brains are meant to do - protect us. This is why I wrote Hey Warrior.

What we focus on is what becomes powerful. If we focus on the anxiety, it will big itself up to unbearable.

What we need to do is focus on both sides - the anxiety and the brave. Anxiety, courage, strength - they all exist together. 

Anxiety isn’t the absence of brave, it’s the calling of brave. It’s there because you’re about to do something hard, brave, meaningful - not because there’s something wrong with you.

First, acknowledge the anxiety. Without this validation, anxiety will continue to do its job and prepare the body for fight or flight, and drive big feelings to recruit the safety of another human.

Then, we speak to the brave. We know it’s there, so we usher it into the light:

‘Yes I know this is big. It’s hard [being away from the people you love] isn’t it. And I know you can do this. We can do hard things can’t we.

You are one of the bravest, strongest people I know. Being brave feels scary and hard sometimes doesn’t it. It feels like brave isn’t there, but it’s always there. Always. And you know what else I know? It gets easier every time. I’ve know this because I’ve seen you do hard things, and because I’ve felt like this too, so many times. I know that you and me, even when we feel anxious, we can do brave. It’s always in you. I know that for certain.’♥️
Our job as parents isn’t to remove their distress around boundaries, but to give them the experiences to recognise they can handle boundaries - holding theirs and respecting the boundaries others. 

Every time we hold a boundary, we are giving our kids the precious opportunity to learn how to hold their own.

If we don’t have boundaries, the risk is that our children won’t either. We can talk all we want about the importance of boundaries, but if we don’t show them, how can they learn? Inadvertently, by avoiding boundary collisions with them, we are teaching them to avoid conflict at all costs. 

In practice, this might look like learning to put themselves, their needs, and their feelings away for the sake of peace. Alternatively, they might feel the need to control other people and situations even more. If they haven’t had the experience of surviving a collision of needs or wants, and feeling loved and accepted through that, conflicting needs will feel scary and intolerable.

Similarly, if we hold our boundaries too harshly and meet their boundary collisions with shame, yelling, punishment or harsh consequences, this is how we’re teaching them to respond to disagreement, or diverse needs and wants. We’re teaching them to yell, fight dirty, punish, or overbear those who disagree. 

They might also go the other way. If boundaries are associated with feeling shamed, lonely, ‘bad’, they might instead surrender boundaries and again put themselves away to preserve the relationship and the comfort of others. This is because any boundary they hold might feel too much, too cruel, or too rejecting, so ‘no boundary’ will be the safest option. 

If we want our children to hold their boundaries respectfully and kindly, and with strength, we will have to go first.

It’s easy to think there are only two options. Either:
- We focus on the boundary at the expense of the relationship and staying connected to them.
- We focus on the connection at the expense of the boundary. 

But there is a third option, and that is to do both - at the same time. We hold the boundary, while at the same time we attend to the relationship. We hold the boundary, but with warmth.♥️
Sometimes finding the right words is hard. When their words are angry and out of control, it’s because that’s how they feel. 

Eventually we want to grow them into people who can feel all their feelings and lasso them into words that won’t break people, but this will take time.

In the meantime, they’ll need us to model the words and hold the boundaries firmly and lovingly. This might sound like:

‘It’s okay to be angry, and it’s okay not to like my decision. It’s not okay to speak to me like that. I know you know that. My answer is still no.’

Then, when they’re back to calm, have the conversation: 

‘I wonder if sometimes when you say you don’t like me, what you really mean is that you don’t like what I’ve done. It’s okay to be angry at me. It’s okay to tell me you’re angry at me. It’s not okay to be disrespectful.

What’s important is that you don’t let what someone has done turn you into someone you’re not. You’re such a great kid. You’re fun, funny, kind, honest, respectful. I know you know that yelling mean things isn’t okay. What might be a better way to tell me that you’re angry, or annoyed at what I’ve said?’♥️
We humans feel safest when we know where the edges are. Without boundaries it can feel like walking along the edge of a mountain without guard rails.

Boundaries must come with two things - love and leadership. They shouldn’t feel hollow, and they don’t need to feel like brick walls. They can be held firmly and lovingly.

Boundaries without the ‘loving’ will feel shaming, lonely, harsh. Understandably children will want to shield from this. This ‘shielding’ looks like keeping their messes from us. We drive them into the secretive and the forbidden because we squander precious opportunities to guide them.

Harsh consequences don’t teach them to avoid bad decisions. They teach them to avoid us.

They need both: boundaries, held lovingly.

First, decide on the boundary. Boundaries aren’t about what we want them to do. We can’t control that. Boundaries are about what we’ll do when the rules are broken.

If the rule is, ‘Be respectful’ - they’re in charge of what they do, you’re in charge of the boundary.

Attend to boundaries AND relationship. ‘It’s okay to be angry at me. (Rel’ship) No, I won’t let you speak to me like that. (Boundary). I want to hear what you have to say. (R). I won’t listen while you’re speaking like that. (B). I’m  going to wait until you can speak in a way I can hear. I’m right here. (R).

If the ‘leadership’ part is hard, think about what boundaries meant for you when you were young. If they felt cruel or shaming, it’s understandable that that’s how boundaries feel for you now. You don’t have to do boundaries the way your parents did. Don’t get rid of the boundary. Add in a loving way to hold them.

If the ‘loving’ part is hard, and if their behaviour enrages you, what was it like for you when you had big feelings as a child? If nobody supported you through feelings or behaviour, it’s understandable that their big feelings and behaviour will drive anger in you.

Anger exists as a shield for other more vulnerable feelings. What might your anger be shielding - loneliness? Anxiety? Feeling unseen? See through the behaviour to the need or feeling behind it: This is a great kid who is struggling right now. Reject the behaviour, support the child.♥️

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