Living in the Shadow of Anorexia Nervosa

Living in the Shadow of Anorexia Nervosa
A guest post by Rebecca Perkins

Eight years ago I finally faced up to the fact that all was not well with my beautiful 14-year-old daughter’s health. She had over many months and in all reality a number of years been gradually changing her eating and exercise habits. I didn’t want to see, I didn’t want to name what I suspected was happening to my girl.

The numerous trips to the doctor, the hospital trips for any number of ‘presenting’ conditions hid from all of us — family, doctor, friends, consultants — the fact that my daughter was suffering from Anorexia Nervosa. I was witnessing the gradual diminishing of my daughter. Her weight, her energy, her vitality, her general well-being and health were not what they were. The lack of concentration, her mood swings, and her withdrawal from life were all the evidence I knew I needed.

What unfolded next is a mother’s worst nightmare — the fear, the guilt, the anxiety, the sadness, the anger, the distress, the desperation. My daughter was sick. I had so many questions I wanted to ask her, the psychiatrist, the nutritionist, the psychotherapist, myself. I wanted to know why, I wanted to know how. This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt — “if I’d been a better brother”… “if I’d been around more” … “if I hadn’t done as much sport” … My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, “I just want my sister back.”

I carried the weight of not only her illness but the emotional turmoil it was causing in our family. I supported my sons and my wider family in their anxieties. I found some support amongst my friends and my sister, but felt completely isolated and alone.

One of the hardest issues I had to deal with was recognizing and understanding that I couldn’t “fix” her. I couldn’t make her better, I couldn’t give her paracetamol or put a band-aid on a grazed knee. This illness was hers, not mine. She had to want to heal herself. In a way, I had to watch events unfold and be there with unconditional love for her at all times. When the rage came I stood and took the full force. When the tears came I sat and comforted. When the rejection of food came I suggested something else that might appeal. When the fear came I held her in my arms.

Friends and family asked me how I did it. How I coped day to day, week in week out, being constantly there for the family and my daughter. I’m not sure I had any other choice (yes of course we always have a choice, we can choose our attitude even when things seem impossible). I chose to get on with it. I chose to do all I could to be there for my family. I chose to allow my daughter to take control of her illness, her life.

I found a way to separate my daughter’s identity, the real person, from the behavior, which was the illness. I coped with whatever the “behavior” threw at me. My daughter wasn’t her behavior. Thinking back to how we parented when our children were young — we loved the child but didn’t like the tantrums. This is how I made sense of it in my head.

I now appreciate how resilient I am, how I bounce back after setbacks. I believe this is the case because I choose to live my life fully — ups and downs. Even today, 8 years on from her diagnosis, and I struggle to write without tears. Anorexia lived in our house for some time, casting a heavy shadow. It moved on, my daughter is well and living her life having learned like all of us from the experience.

This post originally featured in The Huffington Post and is reprinted here with full permission.


About the Author: Rebecca Perkins

Rebecca Perkins is the author of Best Knickers Always: 50 Lessons for Midlife and founder of RebPerkins.com. Her latest book 40 Words of Wisdom for my 24 Year Old: A Parenting Manifesto (originally a Huffington Post blog) was published in April.

 She began writing to make sense of her life after the ending of her 20 year marriage. Rebecca is a NLP Master Practitioner and Personal Performance Coach working with women to navigate the transition of midlife. She is passionate about midlife as a time for renewal and for living the second half of life with enthusiasm and vigour.

 As a coach she is challenging and fun, motivating and inspiring. Midlife has taught her to be open-minded, to take more risks, to enjoy the simple things and to live each and every day with the question, ‘If not now, when?’ She lives in London and enjoys supporting and being surrounded by her children, spending time with her guy and celebrating life after 50.

 You can contact Rebecca via her website and follow her on FacebookTwitterand Pinterest as well as YouTube.

Follow Rebecca on Instagram for her 365 days of self care #365selfcare 

(I recently read Rebecca’s book, Best Knickers Always: 50 Lessons for Midlife. It’s rich, warm and wonderful and full of practical, insightful ideas – a great read.)

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I love being a parent. I love it with every part of my being and more than I ever thought I could love anything. Honestly though, nothing has brought out my insecurities or vulnerabilities as much. This is so normal. Confusing, and normal. 

However many children we have, and whatever age they are, each child and each new stage will bring something new for us to learn. It will always be this way.

Our children will each do life differently, and along the way we will need to adapt and bend ourselves around their path to light their way as best we can. But we won’t do this perfectly, because we can’t always know what mountains they’ll need to climb, or what dragons they’ll need to slay. We won’t always know what they’ll need, and we won’t always be able to give it. We don’t need to. But we’ll want to. Sometimes we’ll ache because of this and we’ll blame ourselves for not being ‘enough’. Sometimes we won’t. This is the vulnerability that comes with parenting. 

We love them so much, and that never changes, but the way we feel about parenting might change a thousand times before breakfast. Parenting is tough. It’s worth every second - every second - but it’s tough.

Great parents can feel everything, and sometimes it can turn from moment to moment - loving, furious, resentful, compassionate, gentle, tough, joyful, selfish, confused and wise - all of it. Great parents can feel all of it.

Because parenting is pure joy, but not always. We are strong, nurturing, selfless, loving, but not always. Parents aren’t perfect. Love isn’t perfect. And it was meant to be. We’re raising humans - real ones, with feelings, who don’t need to be perfect, and wont  need others to be perfect. Humans who can be kind to others, and to themselves first. But they will learn this from us.

Parenting is the role which needs us to be our most human, beautifully imperfect, flawed, vulnerable selves. Let’s not judge ourselves for our shortcomings and the imperfections, and the necessary human-ness of us.❤️
Brains and bodies crave balance. 

When our bodies are too hot, too cold, fighting an infection, we’ll will shiver or fever or sweat in an attempt to regulate.

These aren’t deliberate or deficient, but part of the magnificent pool of resources our bodies turn to to stay strong for us.

Our nervous systems have the same intense and unavoidable need for balance.

When the brain FEELS unsafe (doesn’t mean it is unsafe) it will attempt to recruit support. How? Through feelings. When we’re in big feels, someone is going to notice. Our boundaries are clear. Were seen, heard, noticed. Maybe not the way we want to be, but when the brain is in ‘distress’ mode, it only cares about the next 15 seconds. This is why we all say or do things we wouldn’t normally do when we’re feeling big sad, angry, anxious, jealous, lonely, frustrated, unseen, unheard, unvalidated.

In that moment, our job isn’t to stop their big feelings. We can’t. In that moment they don’t have the resources or the skills to regulate so they need our help.

When they’re in an emotional storm, our job is to be the anchor - calm, attached, grounded.

Breathe and be with. Hold the boundaries you need to hold to keep everyone (including them) relationally and physically safe, and add warmth. This might sound like nothing at all - just a calm, steady, loving presence, or it might sound like:

‘I know this feels big. I’m here. I want to hear you. (Relationship)

AND
No I won’t hear you while you’re yelling. (Boundary) Get it out of you though. Take your time. I’m right here. (Relationship. The message is, bring your storm to me. I can look after you.)

OR
No I won’t let you hurt my body / sibling’s body. (Boundary. Step away or move sibling out of the way.) I’m right here. You’re not in trouble. I’m right here. (Relationship)

OR if they’re asking for space:
Ok I can see you need space. It’s a good idea that you take the time you need. I’m right here and I’ll check on you in a few minutes. Take your time. There’s no hurry. (Relationship - I can look after you and give you what you need, even when it’s space from me.)’♥️
I think this is one of the hardest things as parents - deciding when to protect them and when to move forward. The line isn’t always clear, but it’s an important one. 

Whenever our kiddos feels the distress of big anxiety, we will be driven to protect them from that distress. It’s what makes us loving, amazing, attentive parents. It’s how we keep them safe. 

The key is knowing when that anxiety is because of true danger, and when it’s because they are about to do something growthful, important, or brave. 

We of course want to hold them back from danger, but not from the things that will grow them. 

So when their distress is triggering ours, as it is meant to, and we’re driven to support their avoidance, ask,

‘Do they feel like this because they’re jn danger or because they’re about to do something brave, important, growthful.’

‘Is this a time for me to hold them back (from danger), or is it a time for me to support them forward (towards something important/ brave/ growthful)?’

And remember, the move towards brave can be a teeny shuffle - one tiny brave step at a time. It doesn’t have to be a leap.❤️

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