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Living in the Shadow of Anorexia Nervosa

Living in the Shadow of Anorexia Nervosa
A guest post by Rebecca Perkins

Eight years ago I finally faced up to the fact that all was not well with my beautiful 14-year-old daughter’s health. She had over many months and in all reality a number of years been gradually changing her eating and exercise habits. I didn’t want to see, I didn’t want to name what I suspected was happening to my girl.

The numerous trips to the doctor, the hospital trips for any number of ‘presenting’ conditions hid from all of us — family, doctor, friends, consultants — the fact that my daughter was suffering from Anorexia Nervosa. I was witnessing the gradual diminishing of my daughter. Her weight, her energy, her vitality, her general well-being and health were not what they were. The lack of concentration, her mood swings, and her withdrawal from life were all the evidence I knew I needed.

What unfolded next is a mother’s worst nightmare — the fear, the guilt, the anxiety, the sadness, the anger, the distress, the desperation. My daughter was sick. I had so many questions I wanted to ask her, the psychiatrist, the nutritionist, the psychotherapist, myself. I wanted to know why, I wanted to know how. This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt — “if I’d been a better brother”… “if I’d been around more” … “if I hadn’t done as much sport” … My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, “I just want my sister back.”

I carried the weight of not only her illness but the emotional turmoil it was causing in our family. I supported my sons and my wider family in their anxieties. I found some support amongst my friends and my sister, but felt completely isolated and alone.

One of the hardest issues I had to deal with was recognizing and understanding that I couldn’t “fix” her. I couldn’t make her better, I couldn’t give her paracetamol or put a band-aid on a grazed knee. This illness was hers, not mine. She had to want to heal herself. In a way, I had to watch events unfold and be there with unconditional love for her at all times. When the rage came I stood and took the full force. When the tears came I sat and comforted. When the rejection of food came I suggested something else that might appeal. When the fear came I held her in my arms.

Friends and family asked me how I did it. How I coped day to day, week in week out, being constantly there for the family and my daughter. I’m not sure I had any other choice (yes of course we always have a choice, we can choose our attitude even when things seem impossible). I chose to get on with it. I chose to do all I could to be there for my family. I chose to allow my daughter to take control of her illness, her life.

I found a way to separate my daughter’s identity, the real person, from the behavior, which was the illness. I coped with whatever the “behavior” threw at me. My daughter wasn’t her behavior. Thinking back to how we parented when our children were young — we loved the child but didn’t like the tantrums. This is how I made sense of it in my head.

I now appreciate how resilient I am, how I bounce back after setbacks. I believe this is the case because I choose to live my life fully — ups and downs. Even today, 8 years on from her diagnosis, and I struggle to write without tears. Anorexia lived in our house for some time, casting a heavy shadow. It moved on, my daughter is well and living her life having learned like all of us from the experience.

This post originally featured in The Huffington Post and is reprinted here with full permission.


About the Author: Rebecca Perkins

Rebecca Perkins is the author of Best Knickers Always: 50 Lessons for Midlife and founder of RebPerkins.com. Her latest book 40 Words of Wisdom for my 24 Year Old: A Parenting Manifesto (originally a Huffington Post blog) was published in April.

 She began writing to make sense of her life after the ending of her 20 year marriage. Rebecca is a NLP Master Practitioner and Personal Performance Coach working with women to navigate the transition of midlife. She is passionate about midlife as a time for renewal and for living the second half of life with enthusiasm and vigour.

 As a coach she is challenging and fun, motivating and inspiring. Midlife has taught her to be open-minded, to take more risks, to enjoy the simple things and to live each and every day with the question, ‘If not now, when?’ She lives in London and enjoys supporting and being surrounded by her children, spending time with her guy and celebrating life after 50.

 You can contact Rebecca via her website and follow her on FacebookTwitterand Pinterest as well as YouTube.

Follow Rebecca on Instagram for her 365 days of self care #365selfcare 

(I recently read Rebecca’s book, Best Knickers Always: 50 Lessons for Midlife. It’s rich, warm and wonderful and full of practical, insightful ideas – a great read.)

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When terrible things happen, we want to make sense of things for our kids, but we can’t. Not in a way that feels like enough. Some things will never make any sense at all.

But here’s what you need to know: You don’t need to make sense of what’s happened to help them feel safe and held. We only need to make sense of how they feel about it - whatever that might be.

The research tells us so clearly that kids and teens are more likely to struggle after a tr@umatic event if they believe their response isn’t normal. 

This is because they’ll be more likely to interpret their response as a deficiency or a sign of breakage.

Normalising their feelings also helps them feel woven into a humanity that is loving and kind and good, and who feels the same things they do when people are hurt. 

‘How you feel makes sense to me. I feel that way too. I know we’ll get through this, and right now it’s okay to feel sad/ scared/ angry/ confused/ outraged. Talk to me whenever you want to and as much as you want to. There’s nothing you can feel or say that I can’t handle.’

And when they ask for answers that you don’t have (that none of us have) it’s always okay to say ‘I don’t know.’ 

When this happens, respond to the anxiety behind the question. 

When we can’t give them certainty about the ‘why’, give them certainty that you’ll get them through this. 

‘I don’t know why people do awful things. And I don’t need to know that to know we’ll get through this. There are so many people who are working hard to keep us safe so something like this doesn’t happen again, and I trust them.’

Remind them that they are held by many - the helpers at the time, the people working to make things safer.

We want them to know that they are woven in to a humanity that is good and kind and loving. Because however many people are ready to do the hurting, there always be far more who are ready to heal, help, and protect. This is the humanity they are part of, and the humanity they continue to build by being who they are.♥️
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But simple isn’t always easy. 

Even for children from safe, loving, homes with engaged, loving parent/s there is so much now that can swallow our kids whole if we let it - the unsafe corners of the internet; screen time that intrudes on play, connection, stillness, sleep, and joy; social media that force feeds unsafe ideas of ‘normal’, and algorithms that hijack the way they see the world. 

They don’t need us to be perfect. They just need us to be enough. Enough to balance what they’re getting fed when they aren’t with us. Enough talking to them, playing with them, laughing with them, noticing them, enjoying them, loving and leading them. Not all the time. Just enough of the time. 

But first, we might have to actively protect the time when screens, social media, and the internet are out of their reach. Sometimes we’ll need to do this even when they fight hard against it. 

We don’t need them to agree with us. We just need to hear their anger or upset when we change what they’ve become used to. ‘I know you don’t want this and I know you’re angry at me for reducing your screen time. And it’s happening. You can be annoyed, and we’re still [putting phones and iPads in the basket from 5pm] (or whatever your new rules are).’♥️
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