How to Support Children When A Parent Is Diagnosed With An Illness

When A Parent Is Diagnosed With An Illness

Being the parent of an 11- and 13-year-old, I am shocked at the number of families we know that have a parent with a life-threatening illness. When I was growing up, I don’t remember hearing of friends or classmates who had to handle these types of family challenges or stresses. 

Just a few years ago, at my children’s school, three mothers in one grade level received breast cancer diagnoses. I know this is not a statistic per se, but the sheer fact that it is now so “common” is harrowing. One of the most frequent questions I get when a diagnosis has been made is, “What can I do as a parent to help and support my child now that my partner is sick?”

There is no simple answer to this question, but there are things you can do to help support your child to stay healthy, secure, and grounded. And no matter what you do or say, you will have to plan for the unexpected. Sometimes there needs to be a plan A, B, C and D! Maintaining routines, asking for help, and honest communication are just three strategies for sustaining a family dealing with a serious or life-threatening illness. 

Maintain Routines and Schedules. 

Initially after a diagnosis is made, some form of chaos usually follows. This can be part of the process — disruptions in the family schedule are inevitable. However, it can be extremely helpful for children to return to routines that include sleep schedules, meal times, and activities because it re-establishes that sense of stability and security.

You can start by writing out a daily schedule for young children or a weekly calendar for older children. Having a schedule written out will also help those supporting you during this time, such as friends, family and paid childcare providers, to maintain routines when you cannot be the one to carry them out. 

In creating your list or calendar, think beyond the places your children need to be, and also include some of the rituals you maintain in your family such as Friday night dinners, movie nights, or yearly trips. Be sure to include these when thinking about your schedules as well, because they help to create a feeling of normalcy.

Ask For Help.

 We live in a culture that values independence and self-sufficiency, even if it becomes detrimental to our wellbeing. Because of these cultural values, it may be even more challenging for us to turn to friends, co-workers, school personnel, or even acquaintances to help in managing our children’s lives.

The reality is you probably will not have the time and energy to manage and control the minutiae of your child’s day. Those around you really do want to contribute and show their love for you and your family. Sometimes it requires a re-framing or shifting of the lens to see that by allowing others to help and give, you can be giving a gift, too. The joy you provide others in receiving is equally as valuable as the help they are offering. Additionally, by asking or accepting help, you are modeling this behavior for your children, which communicates to them that they don’t have to manage their thoughts and feelings all on their own. 

Be honest and keep communication open. 

Talking about the illness and sharing some of the basic facts are very important when communicating with children. There is nothing worse or more anxiety provoking for children than to learn about the truth of their parent’s illness by overhearing it indirectly or from someone else. 

If there is uncertainty or lack of a clear path to treatment or outcomes, it may be helpful to slowly introduce the illness by discussing the first steps that will be taken, such as “Daddy is going in for an important surgery.” In addition, unless the outcome is clearly grim, it is important to convey a confidence in the process — to even begin treatment one needs to mobilize all the confidence he can. 
Finding the right time to talk with your child would be the first step. Being mindful of when your child is most open to this type of dialogue can be helpful. For young children, bedtime can be one of these moments, while talking in the car or during activities might be more comfortable for older children. The key is to be honest about the facts and your feelings. 

Even though it may feel counterintuitive, it can be helpful to show your own emotions. Doing so will help validate some of your children’s own feelings. You can reassure them that you are there to support them and understand their experiences and emotions. 

There is no right or wrong way to handle these tough moments in our family lives. Every family and every child has different needs. These three suggestions can be a starting point in helping to preserve a sense of well being in your home. Just as all practices in parenting, there is absolutely no “right way.” There is no place for guilt, either — guilt does not benefit you or your children. The key is to stay connected and communicate, maintain normalcy through rituals and routines, and accept the love your family and community wish to show you.

Would you like to keep these tips handy for yourself or a friend?  Download the tips below:

WANT THESE TIPS HANDY WHEN YOU NEED THEM?  
Download my top tips for supporting your child when a family member is ill.

supporting child when family member is ill

 

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About the Author: Melissa Benaroya

Melissa Benaroya, LICSW, is a Seattle-based parent coach, speaker and author in the Seattle area (MelissaBenaroya.com). She created the Childproof Parenting online course and is the co-founder of GROW Parenting and Mommy Matters, and the co-author of The Childproof Parent. Melissa provides parents with the tools and support they need to raise healthy children and find more joy in parenting. Melissa offers parent coaching and classes and frequently speaks at area schools and businesses. Check out Melissa’s blog for more great tips on common parenting issues and Facebook for the latest news in parent education.

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Feeling seen, safe, and cared for is a biological need. It’s not a choice and it’s not pandering. It’s a biological need.

Children - all of us - will prioritise relational safety over everything. 

When children feel seen, safe, and a sense of belonging they will spend less resources in fight, flight, or withdrawal, and will be free to divert those resources into learning, making thoughtful choices, engaging in ways that can grow them.

They will also be more likely to spend resources seeking out those people (their trusted adults at school) or places (school) that make them feel good about themselves, rather than avoiding the people of spaces that make them feel rubbish or inadequate.

Behaviour support and learning support is about felt safety support first. 

The schools and educators who know this and practice it are making a profound difference, not just for young people but for all of us. They are actively engaging in crime prevention, mental illness prevention, and nurturing strong, beautiful little people into strong, beautiful big ones.♥️
Emotion is e-motion. Energy in motion.

When emotions happen, we have two options: express or depress. That’s it. They’re the options.

When your young person (or you) is being swamped by big feelings, let the feelings come.

Hold the boundary around behaviour - keep them physically safe and let them feel their relationship with you is safe, but you don’t need to fix their feelings.

They aren’t a sign of breakage. They’re a sign your child is catalysing the energy. Our job over the next many years is to help them do this respectfully.

When emotional energy is shut down, it doesn’t disappear. It gets held in the body and will come out sideways in response to seemingly benign things, or it will drive distraction behaviours (such as addiction, numbness).

Sometimes there’ll be a need for them to control that energy so they can do what they need to do - go to school, take the sports field, do the exam - but the more we can make way for expression either in the moment or later, the safer and softer they’ll feel in their minds and bodies.

Expression is the most important part of moving through any feeling. This might look like talking, moving, crying, writing, yelling.

This is why you might see big feelings after school. It’s often a sign that they’ve been controlling themselves all day - through the feelings that come with learning new things, being quiet and still, trying to get along with everyone, not having the power and influence they need (that we all need). When they get into the car at pickup, finally those feelings they’ve been holding on to have a safe place to show up and move through them and out of them.

It can be so messy! It takes time to learn how to lasso feelings and words into something unmessy.

In the meantime, our job is to hold a tender, strong, safe place for that emotional energy to move out of them.

Hold the boundary around behaviour where you can, add warmth where you can, and when they are calm talk about what happened and how they might do things differently next time. And be patient. Just because someone tells us how to swing a racket, doesn’t mean we’ll win Wimbledon tomorrow. Good things take time, and loads of practice.♥️
Thank you Adelaide! Thank you for your stories, your warmth, for laughing with me, spaghetti bodying with me (when you know, you know), for letting me scribble on your books, and most of all, for letting me be a part of your world today.

So proud to share the stage with Steve Biddulph, @matt.runnalls ,
@michellemitchell.author, and @nathandubsywant. To @sharonwittauthor - thank you for creating this beautiful, brave space for families to come together and grow stronger.

And to the parents, carers, grandparents - you are extraordinary and it’s a privilege to share the space with you. 

Parenting is big work. Tender, gritty, beautiful, hard. It asks everything of us - our strength, our softness, our growth. We’re raising beautiful little people into beautiful big people, and at the same time, we’re growing ourselves. 

Sometimes that growth feels impatient and demanding - like we’re being wrenched forward before we’re ready, before our feet have found the ground. 

But that’s the nature of growth isn’t it. It rarely waits for permission. It asks only that we keep moving.

And that’s okay. 

There’s no rush. You have time. We have time.

In the meantime they will keep growing us, these little humans of ours. Quietly, daily, deeply. They will grow us in the most profound ways if we let them. And we must let them - for their sake, for our own, and for the ancestral threads that tie us to the generations that came before us, and those that will come because of us. We will grow for them and because of them.♥️
Their words might be messy, angry, sad. They might sound bigger than the issue, or as though they aren’t about the issue at all. 

The words are the warning lights on the dashboard. They’re the signal that something is wrong, but they won’t always tell us exactly what that ‘something’ is. Responding only to the words is like noticing the light without noticing the problem.

Our job isn’t to respond to their words, but to respond to the feelings and the need behind the words.

First though, we need to understand what the words are signalling. This won’t always be obvious and it certainly won’t always be easy. 

At first the signal might be blurry, or too bright, or too loud, or not obvious.

Unless we really understand the problem behind signal - the why behind words - we might inadvertently respond to what we think the problem is, not what the problem actually is. 

Words can be hard and messy, and when they are fuelled by big feelings that can jet from us with full force. It is this way for all of us. 

Talking helps catalyse the emotion, and (eventually) bring the problem into a clearer view.

But someone needs to listen to the talking. You won’t always be able to do this - you’re human too - but when you can, it will be one of the most powerful ways to love them through their storms.

If the words are disrespectful, try:

‘I want to hear you but I love you too much to let you think it’s okay to speak like that. Do you want to try it a different way?’ 

Expectations, with support. Leadership, with warmth. Then, let them talk.

Our job isn’t to fix them - they aren’t broken. Our job is to understand them so we can help them feel seen, safe, and supported through the big of it all. When we do this, we give them what they need to find their way through.♥️
Perth and Adeladie - can't wait to see you! 

The Resilient Kids Conference is coming to:

- Perth on Saturday 19 July
- Adelaide on Saturday 2 August

I love this conference. I love it so much. I love the people I'm speaking with. I love the people who come to listen. I love that there is a whole day dedicated to parents, carers, and the adults who are there in big and small ways for young people.

I’ll be joining the brilliant @michellemitchell.author, Steve Biddulph, and @matt.runnalls for a full day dedicated to supporting YOU with practical tools, powerful strategies, and life-changing insights on how we can show up even more for the kids and teens in our lives. 

Michelle Mitchell will leave you energised and inspired as she shares how one caring adult can change the entire trajectory of a young life. 

Steve Biddulph will offer powerful, perspective-shifting wisdom on how we can support young people (and ourselves) through anxiety.

Matt Runnalls will move and inspire you as he blends research, science, and his own lived experience to help us better support and strengthen our neurodivergent young people.

And then there's me. I’ll be talking about how we can support kids and teens (and ourselves) through big feelings, how to set and hold loving boundaries, what to do when behaviour gets big, and how to build connection and influence that really lasts, even through the tricky times.

We’ll be with you the whole day — cheering you on, sharing what works, and holding space for the important work you do.

Whether you live with kids, work with kids, or show up in any way, big and small, for a young person — this day is for you. 

Parents, carers, teachers, early educators, grandparents, aunts, uncles… you’re all part of a child’s village. This event is here for you, and so are we.❤️

See here for @resilientkidsconference tickets for more info https://michellemitchell.org/resilient-kids-conference

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