How to Support Children When A Parent Is Diagnosed With An Illness

When A Parent Is Diagnosed With An Illness

Being the parent of an 11- and 13-year-old, I am shocked at the number of families we know that have a parent with a life-threatening illness. When I was growing up, I don’t remember hearing of friends or classmates who had to handle these types of family challenges or stresses. 

Just a few years ago, at my children’s school, three mothers in one grade level received breast cancer diagnoses. I know this is not a statistic per se, but the sheer fact that it is now so “common” is harrowing. One of the most frequent questions I get when a diagnosis has been made is, “What can I do as a parent to help and support my child now that my partner is sick?”

There is no simple answer to this question, but there are things you can do to help support your child to stay healthy, secure, and grounded. And no matter what you do or say, you will have to plan for the unexpected. Sometimes there needs to be a plan A, B, C and D! Maintaining routines, asking for help, and honest communication are just three strategies for sustaining a family dealing with a serious or life-threatening illness. 

Maintain Routines and Schedules. 

Initially after a diagnosis is made, some form of chaos usually follows. This can be part of the process — disruptions in the family schedule are inevitable. However, it can be extremely helpful for children to return to routines that include sleep schedules, meal times, and activities because it re-establishes that sense of stability and security.

You can start by writing out a daily schedule for young children or a weekly calendar for older children. Having a schedule written out will also help those supporting you during this time, such as friends, family and paid childcare providers, to maintain routines when you cannot be the one to carry them out. 

In creating your list or calendar, think beyond the places your children need to be, and also include some of the rituals you maintain in your family such as Friday night dinners, movie nights, or yearly trips. Be sure to include these when thinking about your schedules as well, because they help to create a feeling of normalcy.

Ask For Help.

 We live in a culture that values independence and self-sufficiency, even if it becomes detrimental to our wellbeing. Because of these cultural values, it may be even more challenging for us to turn to friends, co-workers, school personnel, or even acquaintances to help in managing our children’s lives.

The reality is you probably will not have the time and energy to manage and control the minutiae of your child’s day. Those around you really do want to contribute and show their love for you and your family. Sometimes it requires a re-framing or shifting of the lens to see that by allowing others to help and give, you can be giving a gift, too. The joy you provide others in receiving is equally as valuable as the help they are offering. Additionally, by asking or accepting help, you are modeling this behavior for your children, which communicates to them that they don’t have to manage their thoughts and feelings all on their own. 

Be honest and keep communication open. 

Talking about the illness and sharing some of the basic facts are very important when communicating with children. There is nothing worse or more anxiety provoking for children than to learn about the truth of their parent’s illness by overhearing it indirectly or from someone else. 

If there is uncertainty or lack of a clear path to treatment or outcomes, it may be helpful to slowly introduce the illness by discussing the first steps that will be taken, such as “Daddy is going in for an important surgery.” In addition, unless the outcome is clearly grim, it is important to convey a confidence in the process — to even begin treatment one needs to mobilize all the confidence he can. 
Finding the right time to talk with your child would be the first step. Being mindful of when your child is most open to this type of dialogue can be helpful. For young children, bedtime can be one of these moments, while talking in the car or during activities might be more comfortable for older children. The key is to be honest about the facts and your feelings. 

Even though it may feel counterintuitive, it can be helpful to show your own emotions. Doing so will help validate some of your children’s own feelings. You can reassure them that you are there to support them and understand their experiences and emotions. 

There is no right or wrong way to handle these tough moments in our family lives. Every family and every child has different needs. These three suggestions can be a starting point in helping to preserve a sense of well being in your home. Just as all practices in parenting, there is absolutely no “right way.” There is no place for guilt, either — guilt does not benefit you or your children. The key is to stay connected and communicate, maintain normalcy through rituals and routines, and accept the love your family and community wish to show you.

Would you like to keep these tips handy for yourself or a friend?  Download the tips below:

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supporting child when family member is ill

 

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About the Author: Melissa Benaroya

Melissa Benaroya, LICSW, is a Seattle-based parent coach, speaker and author in the Seattle area (MelissaBenaroya.com). She created the Childproof Parenting online course and is the co-founder of GROW Parenting and Mommy Matters, and the co-author of The Childproof Parent. Melissa provides parents with the tools and support they need to raise healthy children and find more joy in parenting. Melissa offers parent coaching and classes and frequently speaks at area schools and businesses. Check out Melissa’s blog for more great tips on common parenting issues and Facebook for the latest news in parent education.

2 Comments

Aurora

I was such a kid, my mother has a serious genetic illness but when I was a child I didn’t understand anything. I didn’t even hear the proper name of this illness until I was an adult. My mother illness was a taboo in my family and it wasn’t good at all.
I think those advices are really useful and I wish that my parents knew them all in past. This is what I needed.
Actually I have some questions. This illnes is still present in my family so it means that me, my brother, my cousins can get it. We have 50% chance that we already inherited it, but we will know it for sure in older life. But we have a chance to make a genetic test. I wonder – what age is good to let you child know that he or she also can have this illness? This is huge and very scary thing but I don’t believe that hiding this information will be helpful… Is it OK to wait until the person will be a grown up? What do you think about such a situation? Do you have some advices?

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andrea

my close friend had a similar situation…my friend and her sister decided not to have the test because they live everyday positive thinking they might not have it (motorneurone),they were both early 20s when their mom became ill and slowly lost her in stages to the terrible illness.my friend is now 48 has a good life and most of all is happy . wish you and your family a happy healthy life..try to not worry about what not happen. andrea

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Consequences are about repair and restoration, and putting things right. ‘You are such a great kid. I know you would never be mean on purpose but here we are. What happened? Can you help me understand? What might you do differently next time you feel like this? How can we put this right? Do you need my help with that?’

Punishment and consequences that don’t make sense teach kids to steer around us, not how to steer themselves. We can’t guide them if they are too scared of the fallout to turn towards us when things get messy.♥️
Anxiety is driven by a lack of certainty about safety. It doesn’t mean they aren’t safe, and it certainly doesn’t mean they aren’t capable. It means they don’t feel safe enough - yet. 

The question isn’t, ‘How do we fix them?’ They aren’t broken. 

It’s, ‘How do we fix what’s happening around them to help them feel so they can feel safe enough to be brave enough?’

How can we make the environment feel safer? Sensory accommodations? Relational safety?

Or if the environment is as safe as we can make it, how can we show them that we believe so much in their safety and their capability, that they can rest in that certainty? 

They can feel anxious, and do brave. 

We want them to listen to their anxiety, check things out, but don’t always let their anxiety take the lead.

Sometimes it’s spot on. And sometimes it isn’t. Whole living is about being able to tell the difference. 

As long as they are safe, let them know you believe them, and that you believe IN them. ‘I know this feels big and I know you can handle this. We’ll do this together.’♥️
Research has shown us, without a doubt, that a sense of belonging is one of the most important contributors to wellbeing and success at school. 

Yet for too many children, that sense of belonging is dependent on success and wellbeing. The belonging has to come first, then the rest will follow.

Rather than, ‘What’s wrong with them?’, how might things be different for so many kids if we shift to, ‘What needs to happen to let them know we want them here?’❤️
There is a quiet strength in making space for the duality of being human. It's how we honour the vastness of who we are, and expand who we can be. 

So much of our stuckness, and our children's stuckness, comes from needing to silence the parts of us that don't fit with who we 'should' be. Or from believing that the thought or feeling showing up the loudest is the only truth. 

We believe their anxiety, because their brave is softer - there, but softer.
We believe our 'not enoughness', because our 'everything to everyone all the time' has been stretched to threadbare for a while.
We feel scared so we lose faith in our strength.

One of our loving roles as parents is to show our children how to make space for their own contradictions, not to fight them, or believe the thought or feeling that is showing up the biggest. Honour that thought or feeling, and make space for the 'and'.

Because we can be strong and fragile all at once.
Certain and undone.
Anxious and brave.
Tender and fierce.
Joyful and lonely.
We can love who we are and miss who we were.

When we make space for 'Yes, and ...' we gently hold our contradictions in one hand, and let go of the need to fight them. This is how we make loving space for wholeness, in us and in our children. 

We validate what is real while making space for what is possible.
All feelings are important. What’s also important is the story - the ‘why’ - we put to those feelings. 

When our children are distressed, anxious, in fight or flight, we’ll feel it. We’re meant to. It’s one of the ways we keep them safe. Our brains tell us they’re in danger and our bodies organise to fight for them or flee with them.

When there is an actual threat, this is a perfect response. But when the anxiety is in response to something important, brave, new, hard, that instinct to fight for them or flee with them might not be so helpful.

When you can, take a moment to be clear about the ‘why’. Are they in danger or

Ask, ‘Do I feel like this because they’re in danger, or because they’re doing something hard, brave, new, important?’ 

‘Is this a time for me to keep them safe (fight for them or flee with them) or is this a time for me to help them be brave?’

‘What am I protecting them from -  danger or an opportunity to show them they can do hard things?’

Then make space for ‘and’, ‘I want to protect them AND they are safe.’

‘I want to protect them from anxiety AND anxiety is unavoidable - I can take care of them through it.’

‘This is so hard AND they can do hard things. So can I.’

Sometimes you’ll need to protect them, and sometimes you need to show them how much you believe in them. Anxiety can make it hard to tell the difference, which is why they need us.♥️

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