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How to Support Children When A Parent Is Diagnosed With An Illness

When A Parent Is Diagnosed With An Illness

Being the parent of an 11- and 13-year-old, I am shocked at the number of families we know that have a parent with a life-threatening illness. When I was growing up, I don’t remember hearing of friends or classmates who had to handle these types of family challenges or stresses. 

Just a few years ago, at my children’s school, three mothers in one grade level received breast cancer diagnoses. I know this is not a statistic per se, but the sheer fact that it is now so “common” is harrowing. One of the most frequent questions I get when a diagnosis has been made is, “What can I do as a parent to help and support my child now that my partner is sick?”

There is no simple answer to this question, but there are things you can do to help support your child to stay healthy, secure, and grounded. And no matter what you do or say, you will have to plan for the unexpected. Sometimes there needs to be a plan A, B, C and D! Maintaining routines, asking for help, and honest communication are just three strategies for sustaining a family dealing with a serious or life-threatening illness. 

Maintain Routines and Schedules. 

Initially after a diagnosis is made, some form of chaos usually follows. This can be part of the process — disruptions in the family schedule are inevitable. However, it can be extremely helpful for children to return to routines that include sleep schedules, meal times, and activities because it re-establishes that sense of stability and security.

You can start by writing out a daily schedule for young children or a weekly calendar for older children. Having a schedule written out will also help those supporting you during this time, such as friends, family and paid childcare providers, to maintain routines when you cannot be the one to carry them out. 

In creating your list or calendar, think beyond the places your children need to be, and also include some of the rituals you maintain in your family such as Friday night dinners, movie nights, or yearly trips. Be sure to include these when thinking about your schedules as well, because they help to create a feeling of normalcy.

Ask For Help.

 We live in a culture that values independence and self-sufficiency, even if it becomes detrimental to our wellbeing. Because of these cultural values, it may be even more challenging for us to turn to friends, co-workers, school personnel, or even acquaintances to help in managing our children’s lives.

The reality is you probably will not have the time and energy to manage and control the minutiae of your child’s day. Those around you really do want to contribute and show their love for you and your family. Sometimes it requires a re-framing or shifting of the lens to see that by allowing others to help and give, you can be giving a gift, too. The joy you provide others in receiving is equally as valuable as the help they are offering. Additionally, by asking or accepting help, you are modeling this behavior for your children, which communicates to them that they don’t have to manage their thoughts and feelings all on their own. 

Be honest and keep communication open. 

Talking about the illness and sharing some of the basic facts are very important when communicating with children. There is nothing worse or more anxiety provoking for children than to learn about the truth of their parent’s illness by overhearing it indirectly or from someone else. 

If there is uncertainty or lack of a clear path to treatment or outcomes, it may be helpful to slowly introduce the illness by discussing the first steps that will be taken, such as “Daddy is going in for an important surgery.” In addition, unless the outcome is clearly grim, it is important to convey a confidence in the process — to even begin treatment one needs to mobilize all the confidence he can. 
Finding the right time to talk with your child would be the first step. Being mindful of when your child is most open to this type of dialogue can be helpful. For young children, bedtime can be one of these moments, while talking in the car or during activities might be more comfortable for older children. The key is to be honest about the facts and your feelings. 

Even though it may feel counterintuitive, it can be helpful to show your own emotions. Doing so will help validate some of your children’s own feelings. You can reassure them that you are there to support them and understand their experiences and emotions. 

There is no right or wrong way to handle these tough moments in our family lives. Every family and every child has different needs. These three suggestions can be a starting point in helping to preserve a sense of well being in your home. Just as all practices in parenting, there is absolutely no “right way.” There is no place for guilt, either — guilt does not benefit you or your children. The key is to stay connected and communicate, maintain normalcy through rituals and routines, and accept the love your family and community wish to show you.

Would you like to keep these tips handy for yourself or a friend?  Download the tips below:

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Download my top tips for supporting your child when a family member is ill.

supporting child when family member is ill

 

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About the Author: Melissa Benaroya

Melissa Benaroya, LICSW, is a Seattle-based parent coach, speaker and author in the Seattle area (MelissaBenaroya.com). She created the Childproof Parenting online course and is the co-founder of GROW Parenting and Mommy Matters, and the co-author of The Childproof Parent. Melissa provides parents with the tools and support they need to raise healthy children and find more joy in parenting. Melissa offers parent coaching and classes and frequently speaks at area schools and businesses. Check out Melissa’s blog for more great tips on common parenting issues and Facebook for the latest news in parent education.

2 Comments

Aurora

I was such a kid, my mother has a serious genetic illness but when I was a child I didn’t understand anything. I didn’t even hear the proper name of this illness until I was an adult. My mother illness was a taboo in my family and it wasn’t good at all.
I think those advices are really useful and I wish that my parents knew them all in past. This is what I needed.
Actually I have some questions. This illnes is still present in my family so it means that me, my brother, my cousins can get it. We have 50% chance that we already inherited it, but we will know it for sure in older life. But we have a chance to make a genetic test. I wonder – what age is good to let you child know that he or she also can have this illness? This is huge and very scary thing but I don’t believe that hiding this information will be helpful… Is it OK to wait until the person will be a grown up? What do you think about such a situation? Do you have some advices?

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andrea

my close friend had a similar situation…my friend and her sister decided not to have the test because they live everyday positive thinking they might not have it (motorneurone),they were both early 20s when their mom became ill and slowly lost her in stages to the terrible illness.my friend is now 48 has a good life and most of all is happy . wish you and your family a happy healthy life..try to not worry about what not happen. andrea

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Their calm and courage starts with ours.

This doesn’t mean we have to feel calm or brave. The truth is that when a young person is anxious, angry, or overwhelmed, we probably won’t feel calm or brave.

Where you can, tap into that part of you that knows they are safe enough and that they are capable of being brave enough. Then breathe. 

Breathing calms our nervous system so theirs can settle alongside. 

This is co-regulation. It lets them borrow our calm when theirs is feeling out of reach for a while. Breathe and be with.

This is how calm is caught.

Now for the brave: Rather than avoiding the brave, important, growthful things they need to do, as long as they are safe, comfort them through it.

This takes courage. Of course you’ll want to protect them from anything that feels tough or uncomfortable, but as long as they are safe, we don’t need to.

This is how we give them the experience they need to trust their capacity to do hard things, even when they are anxious.

This is how we build their brave - gently, lovingly, one tiny brave step after another. 

Courage isn’t about being fearless - but about trusting they can do hard things when they feel anxious about it. This will take time and lots of experience. So first, we support them through the experience of anxiety by leading, calmly, bravely through the storm.

Because courage isn’t the absence of anxiety.

It’s moving forward, with support, until confidence catches up.♥️
‘Making sure they aren’t alone in it’ means making sure we, or another adult, helps them feel seen, safe, and cared as they move towards the brave, meaningful, growthful thing.❤️
Children will look to their closest adult - a parent, a teacher, a grandparent, an aunt, an uncle - for signs of safety and signs of danger.

What the parent believes, the child will follow, for better or worse.

Anxiety doesn’t mean they aren’t safe or capable. It means they don’t feel safe or capable enough yet.

As long as they are safe, this is where they need to borrow our calm and certainty until they can find their own. 

The questions to ask are, ‘Do I believe they are safe and cared for here?’ ‘Do I believe they are capable?’

It’s okay if your answer is no to either of these. We aren’t meant to feel safe handing our kiddos over to every situation or to any adult.

But if the answer is no, that’s where the work is.

What do you need to know they are safe and cared for? What changes need to be made? What can help you feel more certain? Is their discomfort from something unsafe or from something growthful? What needs to happen to know they are capable of this?

This can be so tricky for parents as it isn’t always clear. Are they anxious because this is new or because it’s unsafe?

As long as they are relationally safe (or have an adult working towards this) and their bodies feel safe, the work is to believe in them enough for them to believe it too - to handle our very understandable distress at their distress, make space for their distress, and show them we believe in them by what we do next: support avoidance or brave behaviour.

As long as they are safe, we don’t need to get rid of their anxiety or big feelings. Lovingly make space for those feelings AND brave behaviour. They can feel anxious and do brave. 

‘I know this feels big. Bring all your feelings to me. I can look after you through all of it. And yes, this is happening. I know you can do this. We’ll do it together.’

But we have to be kind and patient with ourselves too. The same instinct that makes you a wonderful parent - the attachment instinct - might send your ‘they’re not safe’ radar into overdrive. 

Talk to their adults at school, talk to them, get the info you need to feel certain enough, and trust they are safe, and capable enough, even when anxiety (theirs and yours) is saying no.❤️
Anxiety in kids is tough for everyone - kids and the adults who care about them.

It’s awful for them and confusing for us. Do we move them forward? Hold them back? Is this growing them? Hurting them?

As long as they are safe - as long as they feel cared for through it and their bodies feel okay - anxiety doesn’t mean something is wrong. 
It also doesn’t mean they aren’t capable.

It means there is a gap: ‘I want to, but I don’t know that I’ll be okay.’

As long as they are safe, they don’t need to avoid the situation. They need to keep going, with support, so they can gather the evidence they need. This might take time and lots of experiences.

The brain will always abandon the ‘I want to,’ in any situation that doesn’t have enough evidence - yet - that they’re safe.

Here’s the problem. If we support avoidance of safe situations, the brain doesn’t get the experience it needs to know the difference between hard, growthful things (like school, exams, driving tests, setting boundaries, job interviews, new friendships) and dangerous things. 

It takes time and lots of experience to be able to handle the discomfort of anxiety - and all hard, important, growthful things will come with anxiety.

The work for us isn’t to hold them back from safe situations (even though we’ll want to) but to help them feel supported through the anxiety.

This is part of helping them gather the evidence their brains and bodies need to know they can feel safe and do hard things, even when they are anxious.

Think of the space between comfortable (before the growthful thing) and ‘I’ve done the important, growthful thing,’ as ‘the brave space’. 

But it never feels brave. It feels like anxious, nervous, stressed, scared, awkward, clumsy. It’s all brave - because that’s what anxiety is. It’s handling the discomfort of the brave space while they inch toward the important thing.

Any experience in the brave space matters. Even if it’s just little steps at a time. Why? Because this is where they learn that they don’t need to be scared of anxiety when they’re heading towards something important. As long as they are safe, the anxiety of the brave space won’t hurt them. It will grow them.❤️
In the first few days or weeks of school, feelings might get big. This might happen before school (the anticipation) or after school (when their nervous systems reach capacity).

As long as they are safe (relationally, physiologically) their anxiety is normal and understandable and we don’t need to ‘fix’ it or rush them through it. 

They’re doing something big, something brave. Their brains and bodies will be searching for the familiar in the unfamiliar. They’re getting to know new routines, spaces, people. It’s a lot! Feeling safe in that might take time. But feeling safe and being safe are different. 

We don’t need to stop their anxiety or rush them through it. Our work is to help them move with it. Because when they feel anxious, and get safely through the other side of that anxiety, they learn something so important: they learn they can do hard things - even when they feel like they don’t have what it takes, they can do hard things. We know this about them already, but they’ll need experience in safe, caring environments, little by little, to know this for themselves.

Help them move through it by letting them know that all their feelings are safe with you, that their feelings make sense, and at the end of the day, let those feelings do what they need to. If they need to burst out of them like a little meteor shower, that’s okay. Maybe they’ll need to talk, or not, or cry, or get loud, or play, or be still, or messy for a while. That’s okay. It’s a nervous system at capacity looking for the release valve. It’s not a bad child. It’s never that. 

Tomorrow might be tricker, and the next day trickier, until their brains and bodies get enough experience that this is okay.

As long as they are safe, and they get there, it all counts. It’s all brave. It’s all enough.❤️